Communication Matters

Cleft Lip & Palate Diagnosis Delivery: Communication Matters (Cleft Lip & Palate Awareness Week)

May 12, 2015

When my Frankie was diagnosed with a severe cleft lip and palate, this is what happened: My unborn son Francesco “Frankie” Enrico Ventura was diagnosed with a unilateral cleft lip and palate at the Worcestershire Royal Hospital on Wednesday 25th September 2013 when I...

New Campaign: Communication Matters!

May 2, 2015

I will be launching a campaign in the coming months called “Communications Matters” which will promote the importance of excellent communication between healthcare professionals and parents to be, especially when bad news has to be given. This is an area that is...

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Lisa Ventura – Frankie’s Mum & Founder of Frankie’s Legacy

Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…

My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.

My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).

This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.