Reese lives in Oklahoma and was born with a cleft lip/palate. He loves cooking, please pop over to the link below and give him a vote: https://www.bensbeginnerscontest.com/brand/gallery?region_id=us-en&content_id=370...
Read MoreEverything happens for a reason, although we may not understand it at the time, if you hang in there, all the pieces will eventually fall where they belong. So it is literally just 3 weeks and 1 day since Wednesday 25th...
Read MoreI came across an interview this morning when doing my usual daily Twitter check with the celebrity Carol Vorderman. Carol is a Patron of the Cleft Lip And Palate Association and her brother was born with a double cleft lip and...
Read More“You’ve got to accentuate the positive, eliminate the negative, latch on to the affirmative, but don’t mess with Mr in-between”. I’m absolutely thrilled to announce that a guest blog piece I wrote for the Chaplain’s Blog –...
Read MoreSince 25th September when my husband and I were first told that Frankie would be born with a cleft lip and possibly palate, I have been through a maelstrom of different emotions from shock, horror and devastation to peace,...
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Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…
My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.
My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).
This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.
With much love,
Lisa Ventura MBE FCIIS
Frankie’s Mummy
xxxxx
