Frankie’s Story

Frankie’s Story

[youtube] Every year in the UK 1 in 700 babies are born with a cleft lip and palate, 1 in 200 babies are stillborn and 1 in 350,000 babies are born with a genetic condition so rare it has no name and is...

Lisa Ventura – Frankie’s Mum & Founder of Frankie’s Legacy

Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…

My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.

My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).

This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.

We Are Still Mothers