Lisa’s Blog

Mother’s Day Does Not Get Any Easier – And That Is Okay

Mother’s Day Does Not Get Any Easier – And That Is Okay

15 March 2026 Today is Mother's Day in the UK For millions of people, today will mean cards on the breakfast table, bunches of flowers, phone calls and hugs. It will mean being recognised and celebrated. It will mean warmth. For me, and for so many women just like me,...

Today – 28 February 2026 – is Rare Disease Day

Today – 28 February 2026 – is Rare Disease Day

Today is #RareDiseaseDay, which is an annual day that has been set up to raise awareness of rare diseases This day is very close to my heart because of course on 29 November 2013 Frankie was born sleeping, and it turned out he had Chromosome 15 Duplication Syndrome, a...

Dear Frankie…On Your 12th Birthday From Your Mummy

Dear Frankie…On Your 12th Birthday From Your Mummy

My Darling Frankie, Happy 12th Birthday, my beautiful boy. It's Saturday, 29 November 2025, and you would have been twelve years old today. Twelve. When I hold that number in my mind, I can almost see you, on the cusp of becoming a teenager, all gangly limbs and...

5 Years Later….I’m Back With A Bang

5 Years Later….I’m Back With A Bang

It's been over five years since I last wrote here. Five years of silence on this blog, the blog that means the most to me. Five years since I shared the intimate journey of being an empty armed mother, of navigating grief, of honouring my Frankie’s memory. But the...

Dear Frankie…on your Seventh Birthday xx

Dear Frankie…on your Seventh Birthday xx

Dear Frankie, Today is your 7th heavenly birthday, and I know you are getting well and truly spoilt up there. I’m sure your Great Aunty Maria will have organised a big party for you with lots of jelly, ice cream and cake, your Great Uncle Vincenzo will be playing his...

Take The Red Pill, Take The Blue Pill: The Choices And Decisions We Make

Take The Red Pill, Take The Blue Pill: The Choices And Decisions We Make

I’m sure that many of you reading this will be familiar with the film “The Matrix” from 1999 starring Keanu Reeves.  While in places it was quite confusing, the basic premise of the film was that humans have been enslaved by artificial intelligence machines who have...

Baby Loss Awareness Month – October 2020

Baby Loss Awareness Month – October 2020

October is traditionally seen as Baby Loss Awareness Month, with a particular emphasis around an Awareness Week in the middle of the month with a “Wave of Light” day on October 15. The aim of this is to remember all those who have lost a baby to...

Cleft Lip and Palate Diagnosis Delivery

Cleft Lip and Palate Diagnosis Delivery

When my Frankie was diagnosed with a severe cleft lip and palate, this is what happened: My unborn son Francesco “Frankie” Enrico Ventura was diagnosed with a unilateral cleft lip and palate at the Worcestershire Royal Hospital on Wednesday 25th September 2013 when I...

Lisa Ventura MBE FCIIS – Frankie’s Mummy & Founder of Frankie’s Legacy

Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…

My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.

My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).

This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.

With much love,

Lisa Ventura MBE FCIIS
Frankie’s Mummy
xxxxx

We Are Still Mothers