Spotlight On

Spotlight On…The Cleft Lip & Palate Association

I've had a lot of interaction with the Cleft Lip & Palate Association which is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate. It is unique. CLAPA was set up in 1979 as a partnership between parents and...

Spotlight On….The Pinks & Blues

I’m launching a new series on this blog called “Spotlight On”, where I will write about a person, organisation or company who have been very helpful to me and instrumental in my recovery as a bereaved mother.  For the first in my “Spotlight On” series I have picked...

Lisa Ventura – Frankie’s Mum

My blog "Frankie's Legacy: Love, Loss Grief & Recovery" focuses on raising awareness of early pregnancy loss, stillbirth and neonatal death. Frankie was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome). I'm surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.

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