Today I had a visit from Jayne Tomlinson from the Cleft Lip and Palate Team at Birmingham Children’s Hospital. I wasn’t sure what to expect from this visit so yesterday I posted in the CLAPA support group on Facebook and I had...
Read MoreI was really happy this morning to log onto the Baby and Cleft Twitter account and find that Carmit Bachar from the girl band The Pussycat Dolls is now a follower on there! My husband received our initial diagnosis at the...
Read MoreLast Saturday when my husband and I were travelling up north for our friend’s wedding, we had a “meeting” in the car about the way forward for this blog and website. For now it will remain as a blog so I can chart my journey and...
Read MoreI am absolutely over the moon as “Baby and Cleft” has had its first bit of press coverage in the Worcester News, in the form of the weekly column that appears in the health section of the paper by Rev David Southall:...
Read MoreI’ve had a long standing relationship with my local newspaper the Worcester News for many years due to the areas of work I’ve been involved in and as a Director and Founder of the Worcestershire Literary Festival, so...
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Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…
My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.
My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).
This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.
With much love,
Lisa Ventura MBE FCIIS
Frankie’s Mummy
xxxxx
