After being told that we probably wouldn’t get any news from the tests till Friday, I tried my very best to get on with things and fill my time up as best as possible so I went back to work yesterday which helped focus my mind a...
Read MoreI planned to update “Baby and Cleft” with some new entries before now, but I had a nice relaxing weekend with my husband and tried to stay offline as much as possible. My father-in-law is in hospital and my husband has been...
Read MoreIt is exactly one month today since baby Frankie was diagnosed with his cleft lip and possibly palate and the sonographer at the Worcestershire Royal Hospital during a scan I had at 23 weeks uttered the words, “I can see an...
Read MoreWhen baby Frankie was initially diagnosed with a cleft lip/palate on 25th September, one of the things that went through my mind at the time, which seems absolutely absurd and crazy now, was that I wouldn’t be able to take him...
Read MoreToday I had a visit from Jayne Tomlinson from the Cleft Lip and Palate Team at Birmingham Children’s Hospital. I wasn’t sure what to expect from this visit so yesterday I posted in the CLAPA support group on Facebook and I had...
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Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…
My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.
My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).
This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.
