Category: CLAPA
Famous People With A Cleft Lip & Palate (Clef...
Posted by Frankie's Legacy | May 16, 2015 | 0 |
Interview: Anna Martindale Of The Cleft Lip &...
Posted by Frankie's Legacy | May 15, 2015 | 0 |
Cleft Lip & Palate Awareness Week: Proud Pare...
Posted by Frankie's Legacy | May 14, 2015 | 0 |
Interview: Annie Clothier, Volunteer For CLAPA Sou...
Posted by Frankie's Legacy | May 13, 2015 | 0 |
Cleft Lip & Palate Diagnosis Delivery: Commun...
Posted by Frankie's Legacy | May 12, 2015 | 0 |
FEATURED POSTS
Bereavement
LatestDear Frankie…on your Seventh Birthday xx
by Lisa Ventura | Nov 29, 2020 |
Dear Frankie, Today is your 7th heavenly birthday, and I know you are getting well and truly...
Grief
LatestTake The Red Pill, Take The Blue Pill: The Choices And Decisions We Make
by Frankie's Legacy | Feb 4, 2018 |
I’m sure that many of you reading this will be familiar with the film “The Matrix” from 1999...
Support
LatestBaby Loss Awareness Month – October 2018
by Lisa Ventura | Oct 1, 2018 |
October is traditionally seen as Baby Loss Awareness Month, with a particular emphasis around an...
CONTRIBUTE
Frankie's Legacy Posts
- Blog
- Articles
- Awareness Raising
- Francesco Enrico Ventura
- News
Goodbye To The Butterfly Awards
by Lisa Ventura | Oct 26, 2019 |
Yesterday I saw the news that the organisers of The Butterfly Awards have taken the decision to...
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Baby Loss Awareness Month – October 2018
by Lisa Ventura | Oct 1, 2018 |
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An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 |
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Not Out Of Mind Service in Worcester to Remember Our Babies on 13 October 2018
by Lisa Ventura | Sep 23, 2018 |
Worcestershire Acute Hospitals NHS Trust organises an annual service to remember the babies who...
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An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 |
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Big Me, Little Me
by Frankie's Legacy | Jan 7, 2018 |
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Baby Loss Awareness Month – October 2018
by Lisa Ventura | Oct 1, 2018 |
October is traditionally seen as Baby Loss Awareness Month, with a particular emphasis around an...
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Three And A Half Years PF – Post Frankie
by Frankie's Legacy | May 24, 2017 |
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Finding The BF (Before Frankie) Me Again….
by Frankie's Legacy | Jun 5, 2015 |
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Dear Frankie…on your Seventh Birthday xx
by Lisa Ventura | Nov 29, 2020 |
Dear Frankie, Today is your 7th heavenly birthday, and I know you are getting well and truly...
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An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 |
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A Review Of 2017 From An Empty Armed Mother
by Frankie's Legacy | Dec 31, 2017 |
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Three And A Half Years PF – Post Frankie
by Frankie's Legacy | May 24, 2017 |
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It Was The Year Of Rebuilding….
by Frankie's Legacy | Nov 20, 2016 |
Not Out Of Mind Service in Worcester to Remember Our Babies on 13 October 2018
by Lisa Ventura | Sep 23, 2018 |
Worcestershire Acute Hospitals NHS Trust organises an annual service to remember the babies who...
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It Was The Year Of Rebuilding….
by Frankie's Legacy | Nov 20, 2016 |
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Appreciate Our NHS….You’ll Miss It If It Goes….
by Frankie's Legacy | Mar 1, 2015 |
Resources
- Cleft Lip
- Cleft Palate
- Chromosome 15 Duplication Syndrome
- Stillbirth
- hyper fertility
An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 | 0 |
It is March 2018, and right now my life has never been more settled, and I’ve never been as happy...
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Famous People With A Cleft Lip & Palate (Cleft Lip & Palate Awareness Week)
by Frankie's Legacy | May 16, 2015 | 0 |
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An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 | 0 |
It is March 2018, and right now my life has never been more settled, and I’ve never been as happy...
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Famous People With A Cleft Lip & Palate (Cleft Lip & Palate Awareness Week)
by Frankie's Legacy | May 16, 2015 | 0 |
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An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 | 0 |
It is March 2018, and right now my life has never been more settled, and I’ve never been as happy...
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Genetic Counselling – Good News!
by Frankie's Legacy | Feb 6, 2014 | 0 |
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Frankie & Chromosome 15 Duplication Syndrome – Part 2
by Frankie's Legacy | Jan 17, 2014 | 0 |
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Frankie & Chromosome 15 Duplication Syndrome – Part 1
by Frankie's Legacy | Jan 17, 2014 | 0 |
Not Out Of Mind Service in Worcester to Remember Our Babies on 13 October 2018
by Lisa Ventura | Sep 23, 2018 | 0 |
Worcestershire Acute Hospitals NHS Trust organises an annual service to remember the babies who...
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Take The Red Pill, Take The Blue Pill: The Choices And Decisions We Make
by Frankie's Legacy | Feb 4, 2018 | 0 |
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For April 1st….A Polite Request
by Frankie's Legacy | Mar 31, 2015 | 2 |
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The Butterfly Awards 2014
by Frankie's Legacy | Oct 13, 2014 | 0 |
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Time For Reflection….
by Frankie's Legacy | Aug 10, 2014 | 0 |
An Account of Mother’s Day from an Empty Armed Mother
by Frankie's Legacy | Mar 11, 2018 | 0 |
It is March 2018, and right now my life has never been more settled, and I’ve never been as happy...
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Coming To Terms With Having Hyper Fertility
by Frankie's Legacy | Apr 19, 2015 | 4 |
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How Much Information Sharing Is Too Much?
by Frankie's Legacy | Mar 30, 2015 | 2 |
Search This Blog
Lisa Ventura – Frankie’s Mum & Founder of Frankie’s Legacy
Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…
My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.
My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).
This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.