Lisa’s Blog

Press Coverage For Cleft Awareness In The Worcester News

Despite all the stress that this week has brought me, it has also been a very positive week in terms of my cleft awareness campaign.  FIrstly, the article that I was interviewed for by Tarik Al Rasheed appeared in the health section of last Monday's Worcester News:...

Officially In The Third Trimester & 28 Week Midwife Check

After the wonderful news that Frankie does not have Downs, Edwards, Patau’s or anything else I had to get back on track and yesterday I had my 28 week check up with my midwife.  She didn’t know what had happened in Birmingham last Monday so I filled her in and she was...

The Results….Earlier Than We Expected!!

After being told that we probably wouldn’t get any news from the tests till Friday, I tried my very best to get on with things and fill my time up as best as possible so I went back to work yesterday which helped focus my mind a bit more.  Frankie was kicking like mad...

Yet Another Setback

I planned to update “Baby and Cleft” with some new entries before now, but I had a nice relaxing weekend with my husband and tried to stay offline as much as possible.  My father-in-law is in hospital and my husband has been going to see him every night after he...

The Diagnosis – One Month On……

It is exactly one month today since baby Frankie was diagnosed with his cleft lip and possibly palate and the sonographer at the Worcestershire Royal Hospital during a scan I had at 23 weeks uttered the words, “I can see an abnormality”.  Those words changed my life...

Turning Another Corner……

When baby Frankie was initially diagnosed with a cleft lip/palate on 25th September, one of the things that went through my mind at the time, which seems absolutely absurd and crazy now, was that I wouldn’t be able to take him to mother/baby groups when he’s born and...

Meeting My Cleft Nurse Jayne Tomlinson

Today I had a visit from Jayne Tomlinson from the Cleft Lip and Palate Team at Birmingham Children’s Hospital.  I wasn’t sure what to expect from this visit so yesterday I posted in the CLAPA support group on Facebook and I had some wonderful replies about how good...

Keep Calm….Baby And Cleft Is Growing!

Last Saturday when my husband and I were travelling up north for our friend’s wedding, we had a “meeting” in the car about the way forward for this blog and website. For now it will remain as a blog so I can chart my journey and also will soon start to feature success...

First Piece Of Press Coverage

I am absolutely over the moon as "Baby and Cleft" has had its first bit of press coverage in the Worcester News, in the form of the weekly column that appears in the health section of the paper by Rev David Southall:              ...

Lisa Ventura MBE FCIIS – Frankie’s Mummy & Founder of Frankie’s Legacy

Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…

My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.

My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).

This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.

With much love,

Lisa Ventura MBE FCIIS
Frankie’s Mummy
xxxxx

We Are Still Mothers