Never in my wildest dreams did I think I would be writing this update on here, but Russ and I would like to let you all know that we had some terrible and devastating news yesterday.

I’d been used to feeling Frankie move at least every hour in some form over the last few weeks, so when I didn’t feel him moving yesterday I was worried and we called delivery suite triage and they said go in. While there, despite them trying and trying with the scanner they discovered that his heart had stopped beating, and we were informed that he was no longer alive.

Tomorrow I will be admitted to the Worcestershire Royal Hospital to be induced and I will have to deliver him. Russ and I are absolutely devastated beyond words, we are trying to come to terms with this news, and would appreciate some time and space to do so. I promise to reply to any messages and comments on here as soon as I can and as soon as I feel able, but right now my world has completely fallen apart and I can’t see beyond tomorrow.

Today Russ created a website in memory of Frankie, and the temporary link is:

We’ll make a further announcement in the next few days with the details of the funeral arrangements, and instead of flowers will be requesting donations to the Cleft Lip & Palate Association Charity (CLAPA) via our JustGiving page

I know that you all will feel for us during this time, and that you all loved Frankie very much as we did, and he was very very special indeed. We would appreciate some time to gather our thoughts, sort out our plans, and spend this time thinking about our son Frankie, and how much he has meant to us this year.

God bless you Frankie – RIP.
Lisa and Russell Ventura