RIP Frankie – 25th November 2013
So this was the day that my heart broke into a million billion trillion pieces, at precisely 2.14pm in the afternoon. Frankie’s heartbeat had stopped, and he was no longer alive inside me. If there was any point in my life where I wanted to die, this was it. I so...
Backtracking……
So this week I have finally started to write about everything that happened, and I will post it in a series of entries on here, hopefully before Christmas Day. And the process has been very therapeutic indeed, and has helped me come to terms with it all just that...
Two Weeks On….
My son Frankie was born sleeping on November 29th 2013 at 4.43am weighing 4lbs 10oz. Those statistics are at the forefront of my mind every second of every day. I have so much I want to write about, I want to document everything that happened since November 25th, I...
Francesco Enrico Ventura – Born Sleeping 29th November 2013
My husband and I are devastated to announce that our son Francesco "Frankie" Enrico Ventura was born sleeping at 4.43am on Friday 29th November 2013 weighing 4lbs 10oz. He was born with a very extensive cleft lip and palate, and it also looked like it ran into his...
Announcement: Francesco Enrico Ventura – RIP
Never in my wildest dreams did I think I would be writing this update on here, but Russ and I would like to let you all know that we had some terrible and devastating news yesterday. I'd been used to feeling Frankie move at least every hour in some form over the last...
Take My Survey – Please Help Me Make Baby And Cleft Even Better!
I’ve had a few days off writing in this blog this week to have at think about the direction in which to take it, and although I have some ideas on this, I would like YOUR feedback to help me make this a valuable resource for parents, health professionals and those...
Baby Frankie On YouTube
Here is the footage from Baby Frankie's scan at Babyvision in Shrewsbury from last week, one clip with audio and one clip without audio: With audio: [youtube http://www.youtube.com/watch?v=enYb5RcB-Ps] Without audio: [youtube...
4D Scan of Baby Frankie at Babyvision
So at lunchtime last Wednesday my husband and I set off for Babyvision near Shrewsbury. When Frankie's cleft lip was first diagnosed we looked into getting a 4D scan of him and paying privately for it, and had a place in Cirencester recommended to us, but then the...
Taking Stock…..
After the events of last week I've taken a few days out to relax and come to terms with what happened, so I've had a few days off from writing this blog. My wonderful parents also purchased a very special item for Frankie's room - a cot: ...
Further Press Coverage For Cleft Awareness In The Worcester News
Yesterday I then wrote to Peter John, the Editor of the Worcester News, to thank him for the article. I'd written to Tarik Al Rasheed separately to thank him and I'd had a few parents of children born with cleft lip/palate get in touch with me and there was definite...
