Lisa’s Blog

Please Vote For Reese!

Reese lives in Oklahoma and was born with a cleft lip/palate.  He loves cooking, please pop over to the link below and give him a vote: https://www.bensbeginnerscontest.com/brand/gallery?region_id=us-en&content_id=370           Good luck...

Things Happen For A Purpose….

Everything happens for a reason, although we may not understand it at the time, if you hang in there, all the pieces will eventually fall where they belong. So it is literally just 3 weeks and 1 day since Wednesday 25th September, when my husband and I received the...

Charity Choice Blog: Interview With Carol Vorderman, Patron Of CLAPA

I came across an interview this morning when doing my usual daily Twitter check with the celebrity Carol Vorderman.  Carol is a Patron of the Cleft Lip And Palate Association and her brother was born with a double cleft lip and palate, which is the most severe form....

Baby And Cleft Included On Rev David Southall’s “Good News” Blog

“You’ve got to accentuate the positive, eliminate the negative, latch on to the affirmative, but don’t mess with Mr in-between”. I’m absolutely thrilled to announce that a guest blog piece I wrote for the Chaplain’s Blog – www.revdavidsouthall.com – is now online. ...

Turning A Corner……

Since 25th September when my husband and I were first told that Frankie would be born with a cleft lip and possibly palate, I have been through a maelstrom of different emotions from shock, horror and devastation to peace, acceptance and ultimately, happiness again....

Poetry From Frankie’s Uncle Andy

One of my close friends is a lovely gentleman by the name of Andrew Green.  I first met Andy when I was involved in a music festival where I live, and he donated some money towards some workshops we put on as part of the festival.  I first met him on the night we gave...

Baby Bump Frankie On Display At A Wedding In September

Literally just 3 days before my husband and I received the news that Frankie would be born with a cleft lip, we attended the wedding of my close friends Steph and Rob in Bradford.  My husband is a keen photographer, so he took some photos of me and baby bump Frankie...

Francesco Enrico – 23 Week Scan Photo

When I returned to the Worcestershire Royal Hospital yet again on September 25th, this was the fateful day that we received the devastating news that Frankie had a cleft lip and possibly palate, and that I was going to be referred for an urgent scan up at Birmingham...

Francesco Enrico – 20 Week Scan Photo

After the 12 week scan, things seemed to settle down a bit.  I was referred to see an obstetrician on August 19th which was a precaution due to the previous miscarriages I'd had, but after having to wait for 2 hours I didn't even get to see a proper obstetrician, just...

Lisa Ventura MBE FCIIS – Frankie’s Mummy & Founder of Frankie’s Legacy

Frankie was a small pebble dropped into the lake of life…but his ripple will be felt forever…

My blog “Frankie’s Legacy: Love, Loss Grief & Recovery” focuses on raising awareness of early pregnancy loss, stillbirth, neonatal death, cleft lip/palate and rare chromosome disorders.

My much loved and much wanted son Francesco “Frankie” Enrico Ventura was born sleeping on 29/11/2013 and had a severe cleft lip/palate, talipes and an extremely rare chromosome disorder (chromosome 15 duplication syndrome).

This blog focuses on my journey as an empty armed mother, and about how I am surviving stillbirth, celebrating Frankie and creating his lasting legacy as best I can.

With much love,

Lisa Ventura MBE FCIIS
Frankie’s Mummy
xxxxx

We Are Still Mothers